Wednesday, January 25, 2017

He's home but not sure it was worth it

I was finally allowed to bring my DH home yesterday afternoon.  You can't believe what this hospital has done to this man.  
First off you must remember that he takes a drug called Cimzia for his auto immune disease called Crohns.  He must take this  once every two weeks to keep the inflammation down to a controllable level in his body.
Now with that being said, the hospital has given him an infection that they cannot find the source of in his body.  It's in his blood stream so about the only way this could of been given to him is a dirty needle or by blood transfusion of which he had 3.  He must be on 2 different kinds of intravenous antibiotics that he receives 2 times a day until February 28th.  After that he will be on pill form for the rest of his life.
Now because of the properties of the Cimzia and that it will nullify the antibiotics that are being given to him, he cannot take that any longer.  We must go to his gastrologist  and find out if there is a different drug to control the Crohn's disease that will not interfere with the antibiotics.  If there isn't, the hospital has essentially killed him because the Crohn's is what has caused most of the damage to his body.......lost of hearing, anuryisms, etc.  
He is so depressed and so am I.  What turned into a simple procedure and good news that he didn't have to go thru radiation and chemo has turned into a nightmare.  He has already told me that he will never have another operation for as long as he's alive.  I cannot blame him.  Needless to say, we will be contacting a lawyer because this must not happen to anyone else.  We pay hundreds of dollars every month for insurance and this is what it comes to.  
One thing I want to point out.  Not once in all the time he was going thru this in the hospital did anyone say they were sorry or any such thing.  I think that is what has made me the maddest.   The Bible says you must forgive but I'm having a hard time with this one.

Blessings, Barbara

12 comments:

diamondc said...

Barbara: I am so sorry, but your husband is home that is good.

Blessings
Catherine

marly said...

An antibiotic for the rest of his life? How do they know this? I hope there is something that can be worked out for his treatment. I have read several sources that medical marijuana (oil or pill form) stops the Crohn's inflammation and offers significant improvement.

Justine said...

So sorry to read this Barbara. Praying for your DH.

gracie said...

Keeping you both in my thoughts. Hospitals sometimes cause more harm than help....

Sandra said...

My heart hurts for you and your husband. I hope you can find help for your husbands health, and that you will get answers to why this has all happened. I will say a prayer. Try and keep the faith.

Vickie said...

Oh my dear Barbara. I am praying. I do not know who to tell you to turn to for help. I am praying help comes to you.♥

Melody said...

I'm very sorry to read of your dear hubbys health issues. I hope you can find help. Marly may be onto something, check it out.

Terri said...

So sorry to hear of your husband's problems, but I am glad he is home. My son also has Crohn's and he gets an IV treatment every 8-9 weeks called Remicade and he has been in remission for many years now. I hope you are able to check it out.

Hugs!

Barb said...

oh mydear friend,
What an awful thing to have happened I am hoping you are feeling hugs from over here, you have had a hard 12 months . Hope you can remain your optomistic self although it must be so difficult. You are both in my prayers for a good outcome.
Barb xx

Jill Werschin said...

I'm beyond sick over what your husband has had to endure. I, too, have an autoimmune condition and am doing everything I can do to keep conventional medicine from harming me with their "good intentions". Have you ever explored "functional medicine". These are the doctors who know how to help with all kinds of autoimmune conditions (without all the harmful drugs). A number of them have written books (at the library) ie Dr. Amy Myers and have web sites.

Robin in Virginia said...

I have no words (well I do, but you don't want to hear them) for you. Just many positive thoughts and even more prayers. I hope his gastro doctor can provide some help and solution.

blueladie said...

Oh Barbara, that is just awful!!! I'm glad you are talking to an attorney. I am sending such heartfelt prayers. Hugs, Cathryn